Having your say about health and care services

You can help to improve our health services. You can volunteer to take part in groups or forums to make sure the views of patients, carers and the public are heard. Your feedback is used to improve health services in the North East of England.


NHS North East and North Cumbria Integrated Care Board (NHS NENC ICB)

NHS North East and North Cumbria ICB is responsible for planning and delivering local health services. This new organisation formed on 1 July 2022 and replaced the former Clinical Commissioning Groups.


Newcastle Patient Public and Carer Engagement Forum

The ICB’s local involvement team supports this forum for patients, members of the public and voluntary organisations in Newcastle. It meets every three months to:

  • hear from the ICB and other organisations on their work
  • explore different NHS and Care themes and topics
  • give patients and members of the public a voice, to help shape the work of the ICB and raise issues that are important to you

The forum is always keen to welcome new members and would love to hear from you.

Find out more about how to get involved with your local NHS.

If you need support to take part in the forum, please contact the team. They can arrange an interpreter for you (including BSL) or if you have hearing or speech difficulties, you can use Relay UK  to help you communicate.

Newcastle Gateshead CCG Forum we need your voice. Join your local forum


Patient Forums, Community Forum and Governing Body meetings

These groups allow patients to share experiences of health and healthcare services and influence future decisions. You can find out about integrated care system development plans and give your views on their work to help improve health services by participating in regular sessions such as

  • Patient Forums
  • Community Forum
  • Governing Body Meetings

Shamima's Story. I have a heart condition and I frequently use GP surgeris and hospitals. I wanted to share my experiences, but I didn't know how as English is not my first language. By attending the forum I was able to communicate my issues. I am happy knowning that my voice was heard. NHS Newcastle Gateshead Clinical Commissioning Group, Join your local forum

Find out more about how to get involved with the Forums for the NHS NENC ICB


GP Practice

Each GP Practice should have a patient group. This may be a face to face group or a virtual group.  Find out by asking your GP practice Manager


Involve North East

Involve North East is a charity that works to improve health and wellbeing through involving communities in decisions around health provision and giving people the chance to have their voices heard.

Involve North East work with and represent communities through Health Action Networks.  Networks come together to discuss issues related to all aspects of health, whether it be identifying gaps in services, putting forward ideas for new GP services, or sharing views and thoughts.

To get involved, you could:

  • join the Health Action Network and take part in its work; or
  • bring your local health issues along to the meetings.

Healthwatch Newcastle

Healthwatch Newcastle helps people speak up about health and social care services in Newcastle, and can provide information about these services.

They help residents have their say in several ways. The Healthwatch Newcastle phone and email service offers free, confidential and independent information about local social care and health services. There is also an online ‘Feedback Centre’ where you can search for local services, as well as review and rate them using a star system.

Healthwatch also run a monthly online forum for anyone interested in health and social care services in Newcastle and Gateshead.


The Newcastle upon Tyne Hospitals NHS Foundation Trust

Newcastle upon Tyne Hospitals NHS Foundation Trust  has a members forum which is made up of people who represent their local community and reflect a variety of different views.

You may want to become a member if you are interested in finding out about the Hospitals Trust’s current and future proposals and want to contribute to some of the projects.  You can comment through the How did we do link or to get involved, you could register and:

  • attend events to see what goes on behind the scenes at the hospitals;
  • receive information about the hospitals’ plans and developments via a members only website and newsletter;
  • join specific projects and give your views on services;
  • stand for election to the Members Council (the governing body for the Hospitals Trust); and
  • vote for your representatives on the Members Council.

There is a new opportunity to influence services for patients and carers – Advising on Patient Experience.  Contact 0191 213 9622 or 0191 223 1214.


Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust

Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust provides a wide range of mental health, disability and substance misuse services.

To get involved, you could register and:

  • receive regular information about the Trust
  • give your views on the Trust’s future plans and your ideas to make things better for everyone who uses its services
  • have your say on issues that interest you
  • elect people to the Council of Governors (which represents the views of the members)
  • stand for election to the Council of Governors
  • join the regular patient reference group chaired by a lay member

Patient Advice and Liaison Service (PALS)

Patient Advice and Liaison Service (PALS) provides support and information to patients, their families and carers, and helps to sort out any problems or concerns about NHS services and the care they receive from any health care service.


Patients Association

The Patients Association is the national telephone and email helpline for anyone trying to navigate health and social care systems in the UK. The helpline service is free and confidential. They can help you to:

  • access to treatments
  • get a second opinion on your health condition or diagnosis
  • make a complaint
  • understand social care
  • get your voice heard as a patient rights and responsibilities
  • change your GP or dentist
  • see your medical records
  • speak to other organisations to help you if needed

The Stroke Research Patient and Carer Panel

The Stroke Research Patient and Carer Panel is a group for stroke patients, carers and those interested in stroke research co-ordinated by NIHR Clinical Research Network North East and North Cumbria and NHS North East & North Cumbria integrated care board

They welcome people who have had a stroke, are caring for a loved one who has had a stroke, work with stroke patients or are involved in stroke research to join the panel. They meet several times a year.


Connected Voice Haref

Connected Voice Haref is a network of organisations and individual practitioners focused on reducing health inequalities and maximising wellbeing and health for people living in black and minority ethnic communities.


Patient safety

There is an independent person for patients to contact with any concerns about NHS patient safety. You can contact the Patient Safety Commissioner for England to get your voice heard and have your feedback acted upon.

Last updated: February 9, 2024